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Ehlers-Danlos National Foundation Center for Research and Clinical Care at GBMC's Harvey Institute - Morgan Dawn Livejournal:The Here And Now
The Here And Now
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Ehlers-Danlos National Foundation Center for Research and Clinical Care at GBMC's Harvey Institute

Ehlers-Danlos National Foundation Center for Research and Clinical Care at GBMC's Harvey Institute for Human Genetics to Open August 16

The Ehlers-Danlos National Foundation (EDNF) is proud to announce the upcoming opening of its first center, the Ehlers-Danlos National Foundation Center for Research and Clinical Care at Greater Baltimore Medical Center's (GBMC) Harvey Institute for Human Genetics. The ribbon-cutting ceremony for the Center will take place Saturday, August 16, in Towson, Maryland.

Sandra Chack, Chair, EDNF Board; Clair Francomano, MD, Director, EDNF Center, and Director of Adult Genetics at the Harvey Institute of Human Genetics at GBMC; and Bonnie Stein, Chair of the Board of Directors forGBMC Healthcare, were instrumental in the planning for the new center and will make remarks during the August 16th ceremony.

“Partnering with GBMC to open the first ever EDNF Center for Clinical Care and Research is an exciting new initiative for EDNF,” said Chack. “Ehlers–Danlos syndrome (EDS) often goes undiagnosed because physicians are not aware of the syndrome. The funding EDNF provided to establish this clinic is a major step forward in advancing EDNF’s mission to educate healthcare practitioners and patients and provide treatment to help people living with EDS.”

With the opening of the center, clinical research, education, and treatment for EDS, a group of inheritable connective tissue disorders for which there is no cure, takes a significant step forward. Funding from EDNF supports this virtual center at GBMC under the direction of Dr. Francomano. This premier EDS research and treatment facility will provide comprehensive clinical care for patients, professional education for physicians, and cutting-edge research.

"We are extremely grateful to EDNF for their support, which will allow us to raise awareness among both physicians and the lay public about Ehlers-Danlos syndrome and to expand treatment options for patients.  We are hopeful that increased awareness will lead to earlier diagnosis and better outcomes for patients with EDS.  Support from EDNF will also facilitate enhanced opportunities for research into causes of EDS and the development of improved means of diagnosis and treatment," said Dr. Francomano.

The ceremony, slated for 4 p.m. to 6 p.m., will occur at the Civiletti Conference Center located in the East Pavilion on the GBMC campus, 6701 N. Charles Street, Towson, MD 21204. Parking is available in the Iris Parking Garage next to the East Pavilion. To learn more about the EDNF Center for Research and Clinical Care, visit http://ednf.org/ednf-center-research-clinical-care.

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